Bing (bing) bong, end of round one
Just to let you know that all seems well with dose 10. Thanks for the positive thinking. Quent rigored at 13.45 and four hours later, we have had no drastic moments. His blood pressure is still low (systolic reading in the 70s) and he looks about 98 years old, but there are no Intensive Care nurses hovering outside the door.
So, all being well, we will be heading home tomorrow for a week. Hooray!
On top of the drugs and the side effects, we will be delighted to get away from the drip machine. It seems to have bing bonged incessantly all week. It rings every time a drug, antibiotic, bag of saline or flush runs out and keeps binging and bonging until you leap up to sort it out. (They put up a "flush" either side of the antibiotics and the IL-2). In addition, it sounds every time Quentin bends his arm and squashes the line. At the beginning of the week, he has to bend it properly to set the alarm off, but by about Wednesday he only needs a minor inflection to trigger it (due to the swelling). As you can imagine, it's hard to get comfortable without bending your arm a little. I've never been on the "hoop, bendy wire, bell" stall at a fete, but I know what 5 days (and nights) of it would feel like.
I will post again in a few days, once we are happily ensconced at home and I've had time to give son and husband plenty of full-on attention.
So, all being well, we will be heading home tomorrow for a week. Hooray!
On top of the drugs and the side effects, we will be delighted to get away from the drip machine. It seems to have bing bonged incessantly all week. It rings every time a drug, antibiotic, bag of saline or flush runs out and keeps binging and bonging until you leap up to sort it out. (They put up a "flush" either side of the antibiotics and the IL-2). In addition, it sounds every time Quentin bends his arm and squashes the line. At the beginning of the week, he has to bend it properly to set the alarm off, but by about Wednesday he only needs a minor inflection to trigger it (due to the swelling). As you can imagine, it's hard to get comfortable without bending your arm a little. I've never been on the "hoop, bendy wire, bell" stall at a fete, but I know what 5 days (and nights) of it would feel like.
I will post again in a few days, once we are happily ensconced at home and I've had time to give son and husband plenty of full-on attention.
5 Comments:
What a relief :) thanks for posting back so soon!
Have a safe way back and lots of love to all of you!
Sylvaine and Panny
A perfect 10, thank goodness for that and for the great scan results. Hope Quent and Oakley enjoy the full-on attention. Look after yourself too; Spring is on its way. Love and best wishes, Robin & Gill. xx
fantastic results on the scan. SO heartening after everything you've been through to get there. hope the r&r is going well for all 3 of you now! loads of love Katie R xxx
i'm so glad that things have gone well. it's really great. hopefully will be able to arrange a date when i can see you again, but with both of our busy lives, that might be difficult! So glad i saw you before christmas, and hope to see you soon. Lots of love to all of you, alice xxxx
Sorry, have to be quick my daughter wants to use the computer!! Fab news hopefully you are on your way home. What a fantastic start to the New Year.
Lots of love
Janice Paul Holly and Hannah xxxx
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